National Organization For Rare Disorders Inc
EIN 133223946 · 501(c)(3) · Public charity · Norwell, MA · recognized 1989
- Assets
- $72.3M
- Revenue
- $50.7M
- Expenses
- $43.0M
- Investment income
- $2.6M
Form 990 fiscal year ended 12/31/2024
Investment managers
Advisory firms linked via Form 990 Part VII independent contractors.
No linked investment managers yet.
Highest-paid contractors
Form 990 Part VII-B, independent contractors paid over $100k.
| Contractor | Services | Compensation |
|---|---|---|
| Future Dmz Future Limo | Patient service | $332,640 |
| Zuckerman Spaeder Llp | Legal services | $107,332 |
| Kendall Square Policy Strategiesllc | Consulting services | $103,087 |
Officers & directors
Form 990 Part VII-A for the latest fiscal year.
| Name | Title | Compensation | Other |
|---|---|---|---|
| Pamela Gavin | Evp (until 5/24)/ceo (as of 5/24) | $441,759 | $33,733 |
| Peter Saltonstall | Ceo (until 5/24)/ceo emeritus (as of 5/24) | $374,441 | $24,515 |
| Prashant Goel | Vp information technology | $283,442 | $14,622 |
| Edward Neilan | Chief medical & scientific officer | $270,662 | $61,615 |
| Alexandra Moore | Vp of development | $245,775 | $12,284 |
| Patrick Collins | Vp community & corporate affairs | $207,141 | $58,445 |
| Jill Pollander | Vp patient services | $182,382 | $25,766 |
| Neeta Kotecha | Vp & cfo | $179,637 | $42,329 |
| Kelleen Esperias | Chief strategy & operations officer | $71,108 | $6,327 |
| Susan Berry Md | Director | $0 | $0 |
| Shafali Jeste Md | Director | $0 | $0 |
| Phillip Pearl Md | Director | $0 | $0 |
| Mike Porath | Director | $0 | $0 |
| Tom Kelly | Director | $0 | $0 |
| Lorna Weir | Director | $0 | $0 |
| Mark Skinner | Director | $0 | $0 |
| Dennis Jackman | Director | $0 | $0 |
| Jim Palma | Secretary | $0 | $0 |
| Leon Eidelman | Treasurer (until 12/24) | $0 | $0 |
| Sheldon Schuster Phd | Vice chair | $0 | $0 |
| Kathleen Holcombe | Chair | $0 | $0 |