Amyotrophic Lateral Sclerosis Assn
EIN 133271855 · 501(c)(3) · Public charity · Saint Paul, MN · recognized 1990
- Assets
- $107M
- Revenue
- $68.6M
- Expenses
- $82.2M
- Investment income
- $1.6M
Form 990 fiscal year ended 01/31/2025
Investment managers
Advisory firms linked via Form 990 Part VII independent contractors.
No linked investment managers yet.
Highest-paid contractors
Form 990 Part VII-B, independent contractors paid over $100k.
| Contractor | Services | Compensation |
|---|---|---|
| A New Direction Inc | Supportive care | $684,166 |
| Barnes & Thornburg Llp | Attorney (legal services) | $368,718 |
| Yes& Holdings Llc | Professional services it | $210,300 |
| Beacon Hill Solutions Group Llc | Temporary help | $202,964 |
| Faegre Drinker Biddle & Reath Llp | Lobbying consulting | $195,300 |
Officers & directors
Form 990 Part VII-A for the latest fiscal year.
| Name | Title | Compensation | Other |
|---|---|---|---|
| Calaneet Balas | President and ceo | $491,499 | $54,769 |
| Greg Mitchell | Chief financial officer | $288,086 | $35,917 |
| Patrick Reedy | Chief development officer | $270,892 | $81,038 |
| Dean Feener | Chief information & technology officer | $264,616 | $26,338 |
| Brian Frederick | Chief marketing & communications officer | $250,253 | $15,417 |
| Lance Slaughter | Svp strategic alliances & governance | $245,671 | $46,889 |
| Jennifer Hjelle | Chief community engagement officer | $244,313 | $31,456 |
| Vickie Lobello | Senior vice president organizational change | $237,001 | $19,437 |
| Kuldip Dave | Senior vice president research | $232,488 | $75,573 |
| Nicole Eck | Chief strategy officer | $231,124 | $18,093 |
| Kimberly Harding Maginnis | Senior vice president care services | $221,492 | $32,600 |
| Keith Gary | Vice president mission acceleration | $219,020 | $45,964 |
| Neil Thakur | Chief mission officer | $195,440 | $36,588 |
| Steve Hanon | Trustee | $0 | $0 |
| Kelly Hall | Trustee | $0 | $0 |
| Seda Goff | Trustee | $0 | $0 |
| Eve Dryer | Trustee | $0 | $0 |
| Annette Bowman | Trustee | $0 | $0 |
| Danielle Boisvert | Trustee | $0 | $0 |
| Bernie Zipprich | Trustee | $0 | $0 |
| Jesse Ybarra | Trustee | $0 | $0 |
| Scott Kauffman | Chair | $0 | $0 |
| Larry Falivena | Chair-elect | $0 | $0 |
| Nancy Leamond | Vice chair (as of 07/24) | $0 | $0 |
| Fred M Degrandis | Vice chair (thru 07/24)/trustee | $0 | $0 |
| Fred M Degrandis | Trustee | $0 | $0 |
| Sandra Piersol | Secretary | $0 | $0 |
| Mark Stancil | Treasurer | $0 | $0 |
| Connie Houston | Trustee | $0 | $0 |
| Eugene Brandon Phd | Trustee | $0 | $0 |
| David Van De Riet | Trustee | $0 | $0 |
| Christi L Kolarcik Phd | Trustee (thru 07/24) | $0 | $0 |
| J Thomas May | Trustee | $0 | $0 |
| Mark Calmes | Trustee (thru 07/24) | $0 | $0 |
| Paul Ingholt | Trustee (thru 07/24) | $0 | $0 |
| Tom Carroll | Trustee | $0 | $0 |
| Michael Benatar | Trustee | $0 | $0 |
| Peter Mckown | Trustee | $0 | $0 |
| Rebecca Moss | Trustee | $0 | $0 |
| Kenton Van Harten | Trustee (thru 10/24) | $0 | $0 |
| Dough Butcher | Trustee | $0 | $0 |
| William Soffell | Trustee | $0 | $0 |
| Chris Tonniges | Trustee | $0 | $0 |