Rare Disease Company Coalition Inc
EIN 862999172 · 501(c)(6) · Public charity · Washington, DC · recognized 2023
- Assets
- $1.4M
- Revenue
- $595K
- Expenses
- $954K
- Investment income
- $0
Form 990 fiscal year ended 12/31/2024
Investment managers
Advisory firms linked via Form 990 Part VII independent contractors.
No linked investment managers yet.
Highest-paid contractors
Form 990 Part VII-B, independent contractors paid over $100k.
| Contractor | Services | Compensation |
|---|---|---|
| Kpm Group Dc | Government affairs and coalition mgmt | $587,744 |
Officers & directors
Form 990 Part VII-A for the latest fiscal year.
| Name | Title | Compensation | Other |
|---|---|---|---|
| Curt Oltmans | Chair | $0 | $0 |
| Del Lebel | Vice-chair | $0 | $0 |
| Chris Porter | Treasurer | $0 | $0 |
| Kathy Perez | Secretary | $0 | $0 |
| Diane Berry | Member, commercial at-large | $0 | $0 |
| Max Bronstein Member Pre | Commercial at-large - until 06/2024 | $0 | $0 |
| Matthew Winton | Member, pre-commercial at-large | $0 | $0 |
| Meg Alexander | Board member - until 09/2024 | $0 | $0 |
| Raquel Cabo Board Member | From 09/2024 to 12/2024 | $0 | $0 |
| Gina Cioffi | Board member | $0 | $0 |
| Eric Endicott | Board member | $0 | $0 |
| Cyndi Goss Board Member | From 11/2024 to 12/2024 | $0 | $0 |
| Ben Harshbarger | Board member | $0 | $0 |
| Susanna Hastings Board Member | From 07/2024 to 12/2024 | $0 | $0 |
| Davelyn Hood | Board member - until 09/2024 | $0 | $0 |
| Lisa Kahlman | Board member | $0 | $0 |
| Jacqui Kirby | Board member | $0 | $0 |
| Katie Landes | Board member | $0 | $0 |
| Kathryn Lowell | Board member | $0 | $0 |
| Amanda Malakoff | Board member | $0 | $0 |
| Peter Norman Board Member | From 09/2024 to 12/2024 | $0 | $0 |
| Deirdre Parsons | Board member | $0 | $0 |
| Vish Seshadri | Board member | $0 | $0 |
| Susan Stewart Board Member | From 09/2024 to 12/2024 | $0 | $0 |
| Francesca Tedesco | Board member | $0 | $0 |
| Izzy Tyszler | Board member | $0 | $0 |
| Lauren Walrath | Board member | $0 | $0 |
| Sonya Weigle | Board member | $0 | $0 |
| Jill Yersak | Board member | $0 | $0 |